A girl with her heart outside her chest

  • il y a 9 ans
Six-year-old Virsaviya Borun has been beating the odds her entire life, having been born with her heart and intestines outside her chest and abdomen.
Virsaviya, a native of Russia who recently moved to South Florida with her mother, suffers from multiple birth defects caused by Pentalogy of Cantrell - a rare congenital condition that occurs in estimated 5.5 in one million live births.
Virsaviya’s heart, which is about the size of a fist, could be seen beating against her abdominal area, protected only by a thin layer of skin.